2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families
By Thomas Exler
For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will be also on the Association for the Bladder Exstrophy Facebook Notes and on Courage to Shine, in addition to the exstrophy e-mail groups.
This year, I have also added a listing for programs in Spain, and here on Courage to Shine have included some pictures and videos to represent each program.
If you have a child who could benefit from one of these programs I would highly recommend you look into one or more of them.
Thomas Exler’s: 2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families: USA, CANADA, UNITED KINGDOM, GERMANY, SPAIN and AUSTRALIA
2012 YOUTH RALLY:
Sponsored by: YOUTH RALLY COMMITEE INC.
Program held on a university campus
Age: 11-17 year olds
Youth Rally provides a non-threatening environment where adolescents with bladder or bowel dysfunction receive education and psychosocial support that encourages independent living.
2012 Site: University of Colorado, Boulder, Colorado
Dates: Monday July 9 – Saturday July 14, 2012
Camper Applications: http://www.rally4youth.org/camperapp.php All application forms due by June 1 2012
Contacts: Linda Aukett firstname.lastname@example.org
Photos from the 2011 Youth Rally: http://www.rally4youth.org/photos.php
Video from the 2008 Youth Rally: http://www.youtube.com/watch?v=2XYgBe-ZI9w
4rd ANNUAL ABC GREAT LAKES CAMPOUT
Sponsored by: ASSOCIATION FOR THE BLADDER EXSTROPHY COMMUNITY – GREAT LAKES CHAPTER
Program is a family campout for families dealing with bladder exstrophy, clocal exstrophy, epispadias or hypospadias
2012 Site: Eby’s Pines Campground and RV Park, Bristol, Indiana
Dates: Friday July 20 – Sunday July 22, 2012
Contact: Alice Ambrose at 616-895-6375or at email@example.com and she will explain how to make the reservation
Video from the 2011 ABC Great Lakes Campout: http://youtu.be/fsbev0UZLXM
2012 CALIFORNIA B.E.S.T CAMPOUT
Sponsored by: CALIFORNIA B.E.S.T (Bladder Exstrophy Support Team)
2012 site: Campground by the Lake, South Lake Tahoe, California
Dates: Friday August 3 – Sunday August 5, 2012
More info on the campout: http://www.californiabest.org/BESTcampout.htm
If you are interested in attending the 2012 Annual B.E.S.T. campout, or if you would like more information, send an e-mail today to Rebecca Hunter at firstname.lastname@example.org or email@example.com
Video from the 2011 California B.E.S.T. Campout: http://youtu.be/zYVLNWFhAYA
Note: I (Tom Exler) have attended the Youth Rally, California BEST Campout and ABC Great Lakes Campout; I highly recommend all three events, but especially for any child 11-17 with bladder or cloacal exstrophy to consider sending them to attend the Youth Rally in Boulder, Colorado.
UOAC OSTOMY YOUTH CAMP
Sponsored by: UNITED OSTOMY ASSOCIATION OF CANADA (UOAC)
Program held at a traditional summer camp
Ages: 9-18 year olds
Children between the ages 9 – 18 who have had or who will have bowel or bladder diversionary surgery or who have related special needs ( i.e. self catheterization, bowel and bladder incontinence), due to birth defects, trauma or disease (e.g.. Crohn’s disease, Ulcerative Colitis, Cancer, Spina Bifida.)
2011 Site: Camp Horizon, Bragg Creek Alberta (southwest of Calgary)
Dates: July 2 – 7 , 2012
More info on the Ostomy Youth Camp: http://www.ostomycanada.ca/camp/camp1
CONTACT: UOAC office or Camp Coordinator, Pat Cimmeck at firstname.lastname@example.org or phone 403-680-9551
Rob Hill on Ostomy Camp video: http://youtu.be/X1CWAn5kW_w
Note: I (Tom Exler) have known many of the campers, camp counselors who have attended over the year including the long time Camp Coordinator Pat Cimmeck, and for the last few years our very good friend to the exstrophy community Barbara Neilson has also been attending, and Barbara has also reminded me , that you do not have to be a Canadian to attend the Canada Ostomy Youth Camp, that they regularly have had campers from the USA, and this year expect some campers from Trinidad to attend. Therefore it you have a child between 9-18 please consider having them attend the UOAC (Canada) Ostomy Camp at Camp Horizon; it will be the highlight of their summer.
Session 1: BREAKAWAY 4 May – 7 May 2012 (Full)
Session 2: BREAKAWAY 24 August – 27 August 2012 (Few spaces left)
Sponsored by: BREAKAWAY VISITS
Program for families
Breakaway are the UK’s only residential weekend activity breaks designed for young people aged 4-18 with bowel and /or bladder diversions/dysfunctions, and their families. Breakaway offers the opportunity to meet others in similar situations, to talk, share experiences and to take part in confidence building action adventure activities.
2012 Site: Youth Hostel Association (YHA) National Forest, Swadlincote, Derbyshire, England
Application for 2012: http://www.events.breakaway-visits.co.uk/node/24
Video from 2011: http://www.facebook.com/v/10150185432171266
Note: In 2011 I (Tom Exler) led a team of international patient role models, who have had all types of bowel and/or bladder diversions/dysfunctions to the first 2011 Breakaway session that is going to be held 29 April – 2 May 2011. I highly recommend it, if you live in the UK and have a child born with bladder or cloacal exstrophy, to consider attending a future Breakaway event.
Asexve – Asociación de Extrofia Vesical, cloacal y epispadias
ASEXVE has three events this year
Annual Meeting for Families dealing with Bladder & Cloacal Exstrophy
Dates: Friday June 22 – Sunday June 24 2012
Location: Palencia, Spain
Exstrophy Camp Children & Teens from 6-17 year old
Dates: Sunday August 5 – Saturday August 11 2012
Location: Navarra, Spain
Meeting for Medical Professions on Bladder & Cloacal Exstrophy
Dates: November of 2012 (Dates have not been finalized)
Location: Madrid, Spain
For more information on any of the events in Spain please contact ASEXVE and Charo López at email@example.com
SHG BLASENEKSTROPHIE ANNUAL MEETING
Sponsored by: SHG Blasenekstrophie
Annual Meeting is held at a Hostel in Oberbernhard and is an event for the entire family.
2011 Site: Oberbernhards, Hilders,Germany
Dates: Friday 21 September – Sunday 23 September 2012
Note: In 2008 I attended the SHG Blasenekstrophie Annual Meeting in Oberbernhards, I recommend anyone in Europe that is looking for an event to attend, to contact Julia Petsch Allies, she will make sure you feel very welcome, even if your German is very rusty like mine.
Bladder Exstrophy, Epispadias, Cloacal Exstrophy, Hypospadias, Australian Community (BEECHAC)
Contact: BEECHAC for future events: www.beechac.org
or BEECHAC President Katy Hargreaves firstname.lastname@example.org
Video link: http://www.facebook.com/v/402361601265