Tommy Ludlow – Climb up to Mt. Everest Base Camp!!


Tommy Ludlow – Climb up to Mt. Everest Base Camp!! 12-year-old Folsom boy climbs Mount Everest despite medical condition Tommy was born with exstrophy, a rare condition that occurs in about 1 of every 50,000 living births, according to the Urology Care Foundation. Author: Frances Wang Published: 3:13 PM PST January 2, 2018   As the Ludlow…

The 2019 B.E.S.T. (Bladder Exstrophy Support Team) Campout


Friday, August 2 – Sunday, August 4, 2019 Location: Campground By The Lake, South Lake Tahoe, CA, USA Address: 1150 Rufus Allen Blvd, South Lake Tahoe, CA 96150, USA IF you’d like to stay in a hotel, accommodations are close by.  Hotel Azure Tahoe  – This hotel is very nice and it’s almost across the street from the…

Family Campouts for Bladder Exstrophy


Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…