Monthly Archives: January 2015

Joshua Kusnick – Major League Baseball & Bladder Exstrophy


Major League Baseball agent Joshua Kusnick courageously shares his journey living with bladder exstrophy in a profile by former Sports Illustrated reporter Joe Lemire in The Cauldren.

View story at Medium.com

Categories: Courage to Shine News | Leave a comment

Great Lakes 7th Annual Summer Campout


July 24July 26, 2015

202“A great way to connect with other families, share in similar experiences and know that you are not alone!”

 

The Great Lakes Chapter of A-BE-C invites all families dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias to the 2015 campout. The weekend includes a picnic lunch, evening campfire with s’mores, and unscheduled time for swimming, playing games, exploring the Shipshewanna area, and–most importantly–having fun with old friends and making new ones!

Click here to download PDF with full details and contact information.

The Great Lakes Chapter of A-BE-C is a regional network serving the Great Lakes states (MI, MN, WI, IL, IN, NY, PA, and OH) as well as Ontario.

Details

Start:     July 24
End:      July 26

Organizer:    Alice Ambrose

Venue

Eby’s Pines RV Park & Campground
Bristol, IN

+ Google Map

Website:
http://www.wbyspines.com
Categories: Courage to Shine News | Leave a comment

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