Joshua Kusnick – Major League Baseball & Bladder Exstrophy


Major League Baseball agent Joshua Kusnick courageously shares his journey living with bladder exstrophy in a profile by former Sports Illustrated reporter Joe Lemire in The Cauldren.

Great Lakes 7th Annual Summer Campout


July 24 – July 26, 2015 “A great way to connect with other families, share in similar experiences and know that you are not alone!”   The Great Lakes Chapter of A-BE-C invites all families dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias to the 2015 campout. The weekend includes a picnic lunch, evening…