To read more: Janet Rankin – Triumph Over Adversity Down Under
2016 Courage to Shine™ Lisha Martinez & Adam Young Award
Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016.
Brittney Nichole Freeman is a 27-year-old born with classic exstrophy. Born Brittney Nichole Godfrey on August 2nd,1988, Brittney had her primary major reconstruction surgery at the Children’s Hospital of the University of Oklahoma in 2000, as a patient Dr. Bradley Kropp. He is, in her eyes, a miracle worker. She loves to proudly show off his handiwork in the form of her awesome belly button; that is also her cathing stoma. She loves that she is able to catheterize, even if it can at times be very painful. As a child she was constantly wet and wore pull ups until she met Dr. Kropp and his nurse Lori in 1999…
To read more: 2016 Courage To Shine ™ – Brittney Freeman – July 9 2016
Jon Pierroz interview by Courage to Shine™ and he just got married this month.
To view more: Jon Pierroz – Adversity to Triumph
By Erin Kavanagh
I remember being around ten years old when I started to realize something separated me from my peers. As I started to grow older and more aware that my everyday routine differed from everyone else’s, I began to feel isolated. Ten-year-old me didn’t know anyone else my age who always had to have a catheter with them, or a bag attached to their abdomen. Then, on the first day of Ostomy Canada Society Youth Camp located just outside of Bragg Creek, AB at Camp Horizon Easter Seals, I met dozens of kids with experiences and ostomy bags just like mine.
By Mindi Plumley Thayer
I was born on April 17, 1982 at 3:43 pm. I was the first child of two for my parents Dale and Nina Plumley. At birth the doctors thought I had a hernia. When they went in to repair the hernia they discovered that I had classic bladder exstrophy. At that point the doctors were in over their heads so they sent me to Seattle Children’s Hospital...
To read more: Mindi Plumley Thayer – Triumphing Over Exstrophy
By Caelin Mooney
My name is Caelin Mooney, I am 22 years old, a future child life specialist, an advocate for children and families, a Godmother, a sister, a cousin, a niece, a daughter… the list could go on and on with labels that pertain to me. Along with all of these other titles, I identify with having classic bladder exstrophy. Growing up, it was ingrained in me that Exstrophy was not who I was, this was something that was a part of my everyday life, and it was normal. I believe I had a normal childhood for the most part, except for a few bumps in the road…
To read more: Caelin Mooney – Kinder than Necessary
Other Birth Defects:
Courage to Shine™ Tours
- The A-BE-C Great Lakes Chapter 8th Annual Summer Campout – June 24-26, 2016
- 2016 International Exstrophy Conference In Oklahoma City, OK, USA – July 8–10, 2016
- The 2016 B.E.S.T. (Bladder Exstrophy Support Team) Campout -August 5 -7, 2016
- The B.E.S.T. Campout – July 31 – August 2 2015
- Great Lakes 7th Annual Summer Campout
- World Rare Disease Day – February 28, 2013
- 12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012
- 4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
- Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
- Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
- Family Campouts for Bladder Exstrophy
- UroMed Sponsors Camp Krazy Legs’ Family Day for Children With Spina Bifida
- 2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families: