Newest Stories:

Rachel Jury – Rocking2Stomas.co.uk

By Rachel Jury

My name is Rachel, and I am a 31-year-old woman from the UK who has been ill now for 10 years. I am a proud double ostomate with a permanent urostomy and ileostomy! It has been a journey, to say the least not just physically but emotionally, mentally and spiritually. I have gone through stages of hopelessness, feeling lost, alone and in self-pity. To now finding gratitude for my illness, helping others and building a career based on my experiences.

To see more go to: Rachel Jury – Rocking2Stomas.co.uk

Emily & Cameron Kohlman & Family

To see more go to: Emily Kohlman – Turning Scars Into Beauty Marks

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2018 A-BE-C Great Lakes Chapter 10th Annual Summer Campout

Friday, July 27 to Sunday, July 29, 2018

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The 2018 B.E.S.T. (Bladder Exstrophy Support Team) Campout

Friday August 3 to Sunday August 5 , 2018

Awards:

2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018

13-Year-Old Tommy Ludlow Receives Courage To Shine™ Award

Tommy Ludlow, the young recipient of the this year’s Courage to Shine award is already inspiring others to turn challenge into opportunity. Tommy received the honor, in part, because he is by all available accounts the first bladder exstrophy patient to hike to Mt. Everest Base Camp.

The 12-day journey to an elevation of 17,600 feet, is no small feat and Tommy had to overcome unique challenges. The burden of carrying medical supplies was lightened thanks to sponsorship from CompactCath. Tommy got hypothermia during the trip and he couldn’t use the medication everyone else did for more oxygen. But he and his family never gave up.

To view more go to: 2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018