Newest Stories:

Wen Holmes – If you don’t leap, you will never know what it is like to FLY!

By Wen Holmes

I was abandoned in Chongqing, China at the West South Hospital Outpatient entrance in July of 2002; I was approximately 2.5 years old. Born with bladder exstrophy; my bladder was still on the outside, the tissues surrounding the bladder were inflamed. I believe my birth parents did the best that they could for me and had no choice but to abandon me so that I could get help. In my heart I know them leaving me at a hospital sent a silent message of love. I was taken to a large orphanage, the Chongqing Social Welfare Institute. As there was no identifying information found with me, my birth-date was set as January 10, 2000 and I was given the name Zhang Wen. The pull of the bladder caused me to walk with a bend at my waist as I could not stand up straight without pain. I had 2 surgeries in Shanghai where my bladder was ultimately removed and my ureters were connected from my kidneys to my sigmoid colon, this is called a ureterosigmoidostomy. These surgeries allowed me to walk upright, run, play with the other kids.

To view more go to: Wen Holmes – If you don’t leap, you will never know what it is like to FLY!

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Awards:

2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018

13-Year-Old Tommy Ludlow Receives Courage To Shine™ Award

Tommy Ludlow, the young recipient of the this year’s Courage to Shine award is already inspiring others to turn challenge into opportunity. Tommy received the honor, in part, because he is by all available accounts the first bladder exstrophy patient to hike to Mt. Everest Base Camp.

The 12-day journey to an elevation of 17,600 feet, is no small feat and Tommy had to overcome unique challenges. The burden of carrying medical supplies was lightened thanks to sponsorship from CompactCath. Tommy got hypothermia during the trip and he couldn’t use the medication everyone else did for more oxygen. But he and his family never gave up.

To view more go to: 2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018