Courage to Shine™ Stories

Radio/Podcast:

Newest Stories:

Kylee Hunter- You Can Call Me “Smiley Kylee”

Kylee Hunter at Macchu Picchu, Peru

Kylee Hunter at Macchu Picchu, Peru

By Kylee Hunter

You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that occurs in 1 out of 50,000 live births, where the bladder and associated structures are improperly formed.  Throughout my childhood I’ve had fourteen surgeries to make my life as “normal” as possible….

Read more:  Kylee Hunter- You Can Call Me “Smiley Kylee”

Matt Elkins – Angling over Adversity

elkins-2015-bfl-stage-aBy Matt Elkins

My name is Matt Elkins; I’m 40 years old; I’m married; I live in Spencerville, Ohio; I’m an environmental specialist by trade; and I have a passion for hunting and tournament bass fishing. That pretty much sums me up in as few words as possible. What is missing from that definition of me is that I was born with cloacal exstrophy, spina bifida and several orthopedic defects…

To read more: Matt Elkins – Angling over Adversity

 

images-12017 International Exstrophy Conference In Philadelphia, Pennsylvania, USA

Friday, June 9 through Sunday, June 11, 2017

The A-BE-C Great Lakes Chapter 9th Annual DSC02594Summer Campout

Friday, July 14 to Sunday, July 16, 2017

The 2017 B.E250.S.T. (Bladder Exstrophy Support
Team) Campout

Friday August 4 to Sunday August  6, 2017

Awards:

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

2016 Courage to Shine™ Lisha Martinez & Adam Young Award

Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016.

Brittney Freeman

Brittney Nichole Freeman is a 27-year-old born with classic exstrophy. Born Brittney Nichole Godfrey on August 2nd,1988,  Brittney had her primary major reconstruction surgery at the Children’s Hospital of the University of Oklahoma in 2000, as a patient Dr. Bradley Kropp. He is, in her eyes, a miracle worker. She loves to proudly show off his handiwork in the form of her awesome belly button; that is also her cathing stoma.  She loves that she is able to catheterize, even if it can at times be very painful.  As a child she was constantly wet and wore pull ups until she met Dr. Kropp and his nurse Lori in 1999…

To read more: 2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

Featured Stories:

Bladder Exstrophy:

Alice Ambrose

Alice Ambrose

Michael Dickman

Michael Dickman

Enrique Escajada

Enrique Escajada

Thomas Exler

Thomas Exler

 

 

 

 

 

Rachel Fisher

Rachel Fisher

Tom Flood

Tom Flood

 

 

 

 

Brittney Freeman

Brittney Freeman

Kylee Hunter

Kylee Hunter

 

 

 

 

Emily Broeren Kohlman

Emily Broeren Kohlman

Joshua Kusnick

Joshua Kusnick

Kristeen Lupton

Kristeen Lupton

 

 

 

 

Tyle Lyle

Tyle Lyle

 Vika and Natalia Mayorova

Vika and Natalia Mayorova

Caelin Mooney

Caelin Mooney

Leonard Newton

Leonard Newton

 

 

 

 

 

Jon Pierroz

Jon Pierroz

Jan Rankin

Jan Rankin

Jessica Sanchez

Jessica Sanchez

Mindi Plumley Thayer

Mindi Plumley Thayer

Cloacal Exstrophy:

James Cole

James Cole

Matt Elkins

Matt Elkins

Misty Blue Foster

Misty Blue Foster

Other Birth Defects:

Jamie Holmes

Jamie Holmes

Kiersten Kelly

Kiersten Kelly

Other Diseases:

Joanna Burgess

Joanna Burgess

Lowell Evans

Lowell Evans

Erin Kavanagh

Erin Kavanagh

Amy Oestreicher

Amy Oestreicher

 

Megg Rose

Megg Rose

Jearlean Taylor

Jearlean Taylor

Courage to Shine™ Tours

Courage to Shine™ Tour IV = USA – July/August 2014

Courage to Shine™ Tour III – Spain – November 2012

Courage to Shine™ Tour II – England/Iceland – April/May 2011

Courage to Shine™ Tour I – Australia – June 2010

Other Stories:

Blog at WordPress.com.

%d bloggers like this: