Courage to Shine™ Stories

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Newest Stories:

WEGO Health Award – Thomas Exler, Jamie Holmes & Amy Oestreicher

To read more: WEGO Health Award – Thomas Exler, Jamie Holmes & Amy Oestreicher

Janet Rankin – Triumph Over Adversity Down Under

To read more: Janet Rankin – Triumph Over Adversity Down Under

Trey Lyle

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

2016 Courage to Shine™ Lisha Martinez & Adam Young Award

Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016.

Brittney Freeman

Brittney Nichole Freeman is a 27-year-old born with classic exstrophy. Born Brittney Nichole Godfrey on August 2nd,1988,  Brittney had her primary major reconstruction surgery at the Children’s Hospital of the University of Oklahoma in 2000, as a patient Dr. Bradley Kropp. He is, in her eyes, a miracle worker. She loves to proudly show off his handiwork in the form of her awesome belly button; that is also her cathing stoma.  She loves that she is able to catheterize, even if it can at times be very painful.  As a child she was constantly wet and wore pull ups until she met Dr. Kropp and his nurse Lori in 1999…

To read more: 2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

Jon Pierroz – Adversity to Triumph

Jon Pierroz

VIDEO Click Here

Jon Pierroz interview by Courage to Shine™ and he just got married this month.

To view more:  Jon Pierroz – Adversity to Triumph

Erin Kavanagh – Being Secure & Sure of Oneself is a Beautiful Thing

Erin Kavanagh

VIDEO Click Here

By Erin Kavanagh

I remember being around ten years old when I started to realize something separated me from my peers. As I started to grow older and more aware that my everyday routine differed from everyone else’s, I began to feel isolated. Ten-year-old me didn’t know anyone else my age who always had to have a catheter with them, or a bag attached to their abdomen. Then, on the first day of Ostomy Canada Society Youth Camp located just outside of Bragg Creek, AB at Camp Horizon Easter Seals, I met dozens of kids with experiences and ostomy bags just like mine.

To read more:  Erin Kavanagh – Being Secure & Sure of Oneself is a Beautiful Thing

Mindi Plumley Thayer – Triumphing Over Exstrophy

Mindi Plumley Thayer

By Mindi Plumley Thayer

I was born on April 17, 1982 at 3:43 pm. I was the first child of two for my parents Dale and Nina Plumley. At birth the doctors thought I had a hernia. When they went in to repair the hernia they discovered that I had classic bladder exstrophy. At that point the doctors were in over their heads so they sent me to Seattle Children’s Hospital...

To read more: Mindi Plumley Thayer – Triumphing Over Exstrophy

 

Caelin Mooney – Kinder than Necessary

Caelin Mooney

By Caelin Mooney

My name is Caelin Mooney, I am 22 years old, a future child life specialist, an advocate for children and families, a Godmother, a sister, a cousin, a niece, a daughter… the list could go on and on with labels that pertain to me.  Along with all of these other titles, I identify with having classic bladder exstrophy.  Growing up, it was ingrained in me that Exstrophy was not who I was, this was something that was a part of my everyday life, and it was normal.  I believe I had a normal childhood for the most part, except for a few bumps in the road…

To read more: Caelin Mooney – Kinder than Necessary

Featured Stories:

Bladder Exstrophy:

Alice Ambrose

Alice Ambrose

Enrique Escajada

Enrique Escajada

Thomas Exler

Thomas Exler

 

Rachel Fisher

Rachel Fisher

Tom Flood

Tom Flood

Brittney Freeman

Brittney Freeman

 

 

 

 

 

 

 

Emily Broeren Kohlman

Emily Broeren Kohlman

Joshua Kusnick

Joshua Kusnick

 

 

 

 

 

 

Kristeen Lupton

Kristeen Lupton

Tyle Lyle

Tyle Lyle

 

 

 

 

 

 

 Vika and Natalia Mayorova

Vika and Natalia Mayorova

Caelin Mooney

Caelin Mooney

Leonard Newton

Leonard Newton

 

 

 

 

 

 

 

Jon Pierroz

Jon Pierroz

 

Jessica Sanchez

Jessica Sanchez

Mindi Plumley Thayer

Mindi Plumley Thayer

Cloacal Exstrophy:

James Cole

James Cole

Misty Blue Foster

Misty Blue Foster

Other Birth Defects:

Jamie Holmes

Jamie Holmes

Kiersten Kelly

Kiersten Kelly

Other Diseases:

Joanna Burgess

Joanna Burgess

Lowell Evans

Lowell Evans

Erin Kavanagh

Erin Kavanagh

Amy Oestreicher

Amy Oestreicher

 

 

Megg Rose

Megg Rose

Jearlean Taylor

Jearlean Taylor

 

 

 

 

 

Courage to Shine™ Tours

Courage to Shine™ Tour IV = USA – July/August 2014

Courage to Shine™ Tour III – Spain – November 2012

Courage to Shine™ Tour II – England/Iceland – April/May 2011

Courage to Shine™ Tour I – Australia – June 2010

 

Other Stories:

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