Courage to Shine™ Stories

Newest Stories:

Emily Kohlman – Turning Scars Into Beauty Marks

By Emily Kohlman

My husband and I met at four years old at Johns Hopkins Hospital in Baltimore, Maryland, scheduled to have the same surgery within days of one another. Cameron called Ohio home. Wisconsin was mine. Both of us were bound to a hospital bed, introduced by the man who gave us back our health and gave us one another, world-renowned surgeon, Dr. Robert Jeffs. We share a birth defect called bladder exstrophy. Back in 1995, our parents could not have guessed this defect would abundantly reward us with a lifetime of blessings.

The 2017 B.E250.S.T. (Bladder Exstrophy Support
Team) Campout

Friday August 4 to Sunday August  6, 2017

Awards:

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

2016 Courage to Shine™ Lisha Martinez & Adam Young Award

Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016.

Brittney Freeman

Brittney Nichole Freeman is a 27-year-old born with classic exstrophy. Born Brittney Nichole Godfrey on August 2nd,1988,  Brittney had her primary major reconstruction surgery at the Children’s Hospital of the University of Oklahoma in 2000, as a patient Dr. Bradley Kropp. He is, in her eyes, a miracle worker. She loves to proudly show off his handiwork in the form of her awesome belly button; that is also her cathing stoma.  She loves that she is able to catheterize, even if it can at times be very painful.  As a child she was constantly wet and wore pull ups until she met Dr. Kropp and his nurse Lori in 1999…

To read more: 2016 Courage To Shine ™ – Brittney Freeman – July 9 2016

Featured Stories:

Bladder Exstrophy:

Alice Ambrose

Alice Ambrose

Michael Dickman

Michael Dickman

Enrique Escajada

Enrique Escajada

Thomas Exler

Thomas Exler

 

 

 

 

 

Rachel Fisher

Rachel Fisher

Tom Flood

Tom Flood

 

 

 

 

Brittney Freeman

Brittney Freeman

Kylee Hunter

Kylee Hunter

 

 

 

 

Emily Broeren Kohlman

Emily Broeren Kohlman

Joshua Kusnick

Joshua Kusnick

Kristeen Lupton

Kristeen Lupton

 

 

 

 

Tyle Lyle

Tyle Lyle

 Vika and Natalia Mayorova

Vika and Natalia Mayorova

Caelin Mooney

Caelin Mooney

Leonard Newton

Leonard Newton

 

 

 

 

 

Jon Pierroz

Jon Pierroz

Jan Rankin

Jan Rankin

Jessica Sanchez

Jessica Sanchez

Mindi Plumley Thayer

Mindi Plumley Thayer

Cloacal Exstrophy:

James Cole

James Cole

Matt Elkins

Matt Elkins

Misty Blue Foster

Misty Blue Foster

Other Birth Defects:

Jamie Holmes

Jamie Holmes

Kiersten Kelly

Kiersten Kelly

Other Diseases:

Joanna Burgess

Joanna Burgess

Lowell Evans

Lowell Evans

Erin Kavanagh

Erin Kavanagh

Amy Oestreicher

Amy Oestreicher

 

Megg Rose

Megg Rose

Jearlean Taylor

Jearlean Taylor

Courage to Shine™ Tours

Courage to Shine™ Tour IV = USA – July/August 2014

Courage to Shine™ Tour III – Spain – November 2012

Courage to Shine™ Tour II – England/Iceland – April/May 2011

Courage to Shine™ Tour I – Australia – June 2010

Other Stories:

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