Courage to Shine™ Stories

Newest Stories:

Paul Young – I’m Going to Talk About Me

By Paul Young

Paul Young

I’ve just titled this article. I should clarify: I mean I’m going to talk about me, and my experiences of bladder exstrophy. I don’t have bladder exstrophy and M.E.

I should also point that I’m a stand-up comedian and while the above isn’t intended as a joke, it’s an example of how accidental humor can creep in when when you’re dealing with unusual medical conditions.

To view more go to:  Paul Young – I’m Going to Talk About Me

Kaitlin Morris – Finding Bravery in Unexpected Places

By Kaitlin Morris

Kaitlin Morris

Hi there, I am Kaitlin (Sheedy) Morris,  I was born on April 15, 1992 with classic bladder exstrophy.   I had my closure operation at nine months of age. I was born and grew up in the Hunter Valley, NSW, Australia, with my Sister; Elle, Mum; Christine and Father; Michael. One of the most valuable things my parents ever taught me, was that I may be different medically, but that didn’t mean my life ever needed to be different than anyone else’s.  They made it their mission to ensure that my life was as ‘normal’ as normal can be.

To view more go to:  Kaitlin Morris – Finding Bravery in Unexpected Places

Awards:

2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018

13-Year-Old Tommy Ludlow Receives Courage To Shine™ Award

Tommy Ludlow, the young recipient of the this year’s Courage to Shine award is already inspiring others to turn challenge into opportunity. Tommy received the honor, in part, because he is by all available accounts the first bladder exstrophy patient to hike to Mt. Everest Base Camp.

The 12-day journey to an elevation of 17,600 feet, is no small feat and Tommy had to overcome unique challenges. The burden of carrying medical supplies was lightened thanks to sponsorship from CompactCath. Tommy got hypothermia during the trip and he couldn’t use the medication everyone else did for more oxygen. But he and his family never gave up.

To view more go to: 2018 Courage to Shine™ – Lisha Martinez & Adam Young Award – Thomas McKeon Ludlow – June 9, 2018

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2019 International Exstrophy Conference in Los Angeles, California, USA

Friday, June, 28 through Sunday, June 30, 2018

2019 A-BE-C Great Lakes Chapter 11th Annual Summer Campout

Friday, July 26 to Sunday, July 28, 2019

The 2019 B.E.S.T. (Bladder Exstrophy Support Team) Campout 

Friday, August 2 – Sunday, August 4, 2019

 

 

Featured Stories:

Bladder Exstrophy:

Alice Ambrose
Alice Ambrose
Michael Dickman
Michael Dickman
Enrique Escajada
Enrique Escajada
Thomas Exler
Thomas Exler

 

 

 

 

Rachel Fisher
Rachel Fisher
Tom Flood
Tom Flood
Brittney Freeman
Brittney Freeman
Kylee Hunter
Kylee Hunter
Emily Broeren Kohlman
Emily Broeren Kohlman

 

 

 

 

Joshua Kusnick
Joshua Kusnick
Kristeen Lupton
Kristeen Lupton – Plop
Tommy Ludlow

 

 

 

 

Tyle Lyle
Tyle Lyle
 Vika and Natalia Mayorova
Vika and Natalia Mayorova
Caelin Mooney
Caelin Mooney
Kaitlin Morris
Leonard Newton
Leonard Newton

 

 

 

 

Jon Pierroz
Jon Pierroz
Jan Rankin
Jan Rankin
Jessica Sanchez
Jessica Sanchez
Mindi Plumley Thayer
Mindi Plumley Thayer
Paul Young

Cloacal Exstrophy & Spina Bifida:

James Cole
James Cole
Matt Elkins
Matt Elkins
Misty Blue Foster
Misty Blue Foster

 

 

 

 

Spencer Kimbro

 

 

 

Spina Bifida:

To Be Announced

VATER Syndrome / VACTERL Association

Jamie Holmes-Ward

Other Birth Defects:

Kiersten Kelly
Kiersten Kelly

Other Diseases:

Joanna Burgess
Joanna Burgess
Lowell Evans
Lowell Evans
Rachel Jury
Erin Kavanagh
Erin Kavanagh
Amy Oestreicher
Amy Oestreicher

 

 

 

 

Megg Rose
Megg Rose
Jearlean Taylor
Jearlean Taylor

Courage to Shine™ Tours

Courage to Shine™ Tour IV = USA – July/August 2014

Courage to Shine™ Tour III – Spain – November 2012

Courage to Shine™ Tour II – England/Iceland – April/May 2011

Courage to Shine™ Tour I – Australia – June 2010