Courage to Shine™ Stories

Newest Stories:

2022 International Exstrophy Conference

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The A-BE-C Great Lakes Chapter 12th Annual Summer Campout

Friday, July 22 to Sunday, July 24, 2022

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2022 B.E.S.T. (Bladder Exstrophy Support Team) Campout – South Lake Tahoe, CA

FRIDAY, July 29 – MONDAY, August 1, 2022

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Awards:

BRITEN DOUGLAS – 2019 COURAGE TO SHINE™ Lisha Martinez & Adam Young Award Recipient

My name is Briten Douglas and I was born on October 27th in 1986 with bladder exstrophy.  That makes me 32 years old!

I say that very proudly because that also makes me a survivor for 32 years of a birth defect that has made me face death more than a handful of times, as well as presented me with challenges that most people could never imagine.  However, in the same breath, I wouldn’t trade this body for any other because it has faced so many odds and fought so many wars … and came out on the other side and won! When I came into this world, I had no bladder and my pelvis was not fully formed.  My legs dangled on either side and at first the doctors didn’t know the extent of the severity of my birth defect.  I was rushed immediately into surgery and my parents were given the unimaginable news that I may not survive due to the birth defect.  They were told that even if I did survive the surgery that I would never be able to walk and that I would live a compromised life.

To view more of: BRITEN DOUGLAS – 2019 COURAGE TO SHINE™ Lisha Martinez & Adam Young Award Recipient

Featured Stories:

Bladder Exstrophy:

Alice Ambrose
Alice Ambrose
Michael Dickman
Michael Dickman
Dilara Arslan
Enrique Escajada
Enrique Escajada

 

Thomas Exler
Thomas Exler

 

Rachel Fisher
Rachel Fisher

 

Tom Flood
Tom Flood

 

Brittney Freeman
Brittney Freeman

 

Kylee Hunter
Kylee Hunter

 

Emily Broeren Kohlman
Emily Broeren Kohlman

 

Wen Holmes

 

Joshua Kusnick
Joshua Kusnick

 

Kristeen Lupton
Kristeen Lupton – Plop

 

Tommy Ludlow

 

Tyle Lyle
Tyle Lyle
 Vika and Natalia Mayorova
Vika and Natalia Mayorova
Caelin Mooney
Caelin Mooney

 

Kaitlin Morris
Leonard Newton
Leonard Newton
Jon Pierroz
Jon Pierroz

 

Jan Rankin
Jan Rankin
Jessica Sanchez
Jessica Sanchez

 

Mindi Plumley Thayer
Mindi Plumley Thayer
Paul Young

Cloacal Exstrophy & Spina Bifida:

James Cole
James Cole
Matt Elkins
Matt Elkins
Misty Blue Foster
Misty Blue Foster
Spencer Kimbro

 

Briten Douglas

Spina Bifida:

To Be Announced

VATER Syndrome / VACTERL Association

Anja Christoffersen
Jamie Holmes-Ward

Other Birth Defects:

Kiersten Kelly
Kiersten Kelly

Other Diseases:

Joanna Burgess
Joanna Burgess
Lowell Evans
Lowell Evans
Rachel Jury
Erin Kavanagh
Erin Kavanagh

 

Amy Oestreicher
Amy Oestreicher

 

Damon Little

 

Megg Rose
Megg Rose

 

Jearlean Taylor
Jearlean Taylor

Courage to Shine™ Tours

Courage to Shine™ Tour IV = USA – July/August 2014

Courage to Shine™ Tour III – Spain – November 2012

Courage to Shine™ Tour II – England/Iceland – April/May 2011

Courage to Shine™ Tour I – Australia – June 2010