2027 International Exstrophy Conference, Sitges, Spain, April 16 – 18, 2027


This is one A-BE-C Conference you’re definitely going to want on your calendar! 🌍💙

The 2027 A-BE-C International Exstrophy Conference is headed to Sitges, Spain, April 16–18, 2027! 🇪🇸🌊

We’re bringing the bladder exstrophy community together from around the world for a weekend filled with:

💙 Connection
📚 Education
🤝 Support
🌎 Community
❤️ Friendship
✨ Unforgettable experiences

Whether you’ve been part of the A-BE-C family for years or are just discovering our community, we hope you’ll join us in beautiful Sitges!

There’s plenty more to come, but for now:

📅 SAVE THE DATE!
💰 START THE SPAIN FUND!
🇪🇸 GET EXCITED!
✈️ WE’LL SEE YOU IN SITGES!

Please share this post and help us spread the word! 🌎💙

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2027 B.E.S.T. Campout, South Lake Tahoe, California


2027 BEST Campout, July 29 – August 3, 2027 Tahoe Vallley Campground South Lake Tahoe Everyone with Bladder Exstrophy or related conditions in invited to attend, along with their families Join us for excellent speakers, activities for the entire family, crafts for the young ones, organized dinners every night, s’mores by the campfire, games, and the kindness and love you could ever want in a support group. for updated information please visit www,besupportteam.org

Davina Azzi: Bladder Exstrophy Advocate, Singer & LA Performer


Davina Azzi — 2026 International Bladder Exstrophy Conference | Los Angeles

🎤 DAVINA AZZI | SPEAKER • SINGER • PERFORMER • ADVOCATE

On July 18, 2026, at the 2026 International Bladder Exstrophy Conference at Children’s Hospital Los Angeles, I had the opportunity to hear Davina Azzi share her story of living with bladder exstrophy.

Davina is a young woman who was born with classic bladder exstrophy and lives with a Mitrofanoff catheterizable channel. She openly shares her experiences online, helping educate others and showing that living with a rare congenital condition does not have to stop you from pursuing your dreams.

At just 20 years old, Davina is already making her mark as a singer, songwriter, pianist, dancer and performer in Los Angeles. Her passion for music and performing is inspiring, and she is using her social-media platforms to share both her artistic journey and her experiences living with bladder exstrophy. Her YouTube channel includes educational content about how she manages catheterization with bladder exstrophy.

🎶 Davina has also released music, including “Tattoo,” a 2025 single with KEN & Davina Azzi.

📍 Los Angeles, California
🎤 Singer • Songwriter • Pianist • Dancer • Performer
💙 Bladder Exstrophy Advocate
🌟 Courage to Shine
🏥 2026 International Bladder Exstrophy Conference
📅 July 18, 2026
📍 Children’s Hospital Los Angeles

Davina’s story is an important reminder that a medical diagnosis is only one part of a person’s story. She is showing the world that you can live with bladder exstrophy, advocate for yourself and others, pursue your passions, perform, create music, and follow your dreams.

It was wonderful to see Davina at the International Bladder Exstrophy Conference and to hear her speak about her experiences.

Keep shining, Davina! 🌟🎤💙

Follow Davina:

📸 Instagram: @davina.azzi
🎥 YouTube: Davina Azzi
🎵 Music: Davina Azzi / KEN & Davina Azzi

HASHTAGS

#DavinaAzzi #DavinaAzziMusic #DavinaAzziSinger #Singer #Songwriter #Musician #Pianist #Dancer #Performer #LiveMusic #LivePerformance #NewMusic #LosAngeles #LAMusic #LosAngelesMusic #LAArtist #EmergingArtist #YoungArtist #MusicArtist #IndieArtist #PopMusic #OriginalMusic #Singing #SingerSongwriter #MusicJourney #FollowYourDreams #DreamBig #NeverGiveUp #DisabilityAdvocate #DisabilityAwareness #DisabilityPride #DisabilityCommunity #DisabledAndProud #RareDisease #RareDiseaseAwareness #RareCondition #BladderExstrophy #BladderExstrophyAwareness #BladderExstrophyCommunity #ClassicBladderExstrophy #Exstrophy #ExstrophyEpispadiasComplex #EEC #CloacalExstrophy #Urology #PediatricUrology #ReconstructiveUrology #Mitrofanoff #Catheter #Catheterization #CatheterizableChannel #OstomyAwareness #MedicalAdvocacy #PatientAdvocate #PatientVoice #PatientStory #HealthAdvocacy #RareDiseaseCommunity #CongenitalCondition #CongenitalDisability #BornDifferent #LivingWithExstrophy #LifeWithExstrophy #ExstrophyStrong #ExstrophyWarrior #ExstrophyFamily #YouAreNotAlone #Inspiration #InspiringStories #Courage #CourageToShine #BeCourageous #ShineBright #Hope #Resilience #Strength #Empowerment #PositiveDisability #DisabilityRepresentation #RepresentationMatters #Inclusion #Accessibility #Community #Advocacy #Awareness #InternationalConference #BladderExstrophyConference #InternationalBladderExstrophyConference #ABEC #ABEC2026 #AssociationForTheBladderExstrophyCommunity #ChildrensHospitalLosAngeles #CHLA #LosAngelesCalifornia #California #LA #PittsburghToLA #ExstrophyCommunity #ExstrophyAwareness #BladderHealth #UrologyCommunity

TAGS / KEYWORDS

Davina Azzi, @davina.azzi, Davina Azzi singer, Davina Azzi musician, Davina Azzi Los Angeles, Davina Azzi performer, Davina Azzi songwriter, Davina Azzi pianist, Davina Azzi dancer, Davina Azzi bladder exstrophy, bladder exstrophy, classic bladder exstrophy, exstrophy epispadias complex, Mitrofanoff, catheterizable channel, catheterization, bladder exstrophy awareness, bladder exstrophy community, exstrophy advocacy, disability advocacy, disability awareness, rare disease awareness, rare congenital conditions, patient advocacy, Courage to Shine, A-BE-C, Association for the Bladder Exstrophy Community, International Bladder Exstrophy Conference, 2026 Bladder Exstrophy Conference, Children’s Hospital Los Angeles, CHLA, Los Angeles, California, singer, songwriter, pianist, dancer, performer, live music, emerging artist, young artist, independent artist, music advocacy, disability representation, inspirational story, resilience, hope, empowerment.

Useful official/public links:
Davina Azzi on Instagram
Davina Azzi on YouTube
Davina Azzi on Apple Music
Children’s Hospital Los Angeles — Bladder Exstrophy Care
Association for the Bladder Exstrophy Community