Rachel Jury of Rocking2Stomas.co.uk and her blog. By Rachel Jury My name is Rachel, and I am a 31-year-old woman from the UK who has been ill now for 10 years. I am a proud double ostomate with a permanent urostomy and ileostomy! It has been a journey, to say the least not just physically but…
Tag: urostomy
Kylee Hunter- You Can Call Me “Smiley Kylee”
You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Janet Rankin – Triumph Over Adversity Down Under
Janet Rankin – Triumph Over Adversity Down Under
Jearlean Taylor – Story of Triumph
Note: In 2013 Jearlean Taylor was awarded the 2013 awarded as Great Comebacks™ East Coast recipient (Rochester, NY) – 2014 awarded as Great Comeback™ National recipient (Nashville, TN) and here is the her story on the Great Comebacks™ website. 2013 Great Comebacks™ East Coast Story of Triumph – “I am not my bags” by Jearlean Taylor I…
Courage to Shine™ – Tour III – Spain – November 2012
Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…
News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012
Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 Pittsburgh, PA, USA, November 5, 2012: Courage to Shine™ Team lead by Thomas Exler, president of the Association for the Bladder Exstrophy Community (ABC) and founder & chairman of Courage to Shine™ along with team member Misty Blue Foster, LVN,…
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
Joanna Burgess–Joy’s Way–A Journey of Survival, Hope and Inspiration – Reposted June 9 2012
Editor’s Note: In honor of Joanna Burgess being honored tonight (June 9, 2012) in Charlotte, North Carolina as this year’s Great Comebacks® National Award recipient, we at Courage to Shine would like to re-post her original story “Joy’s Way – A Journey of Survival, Hope and Inspiration” Originally Published on March 24, 2012: Courage to Shine™ is honored to present the original story of…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…
Misty Blue Foster was Honest and Open About Her Disability When Love Came
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Misty Blue Foster Took a Giant Step Backwards to Reach Her Dream but Stayed Strong
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Spina Bifida (& Cloacal Exstrophy) Doesn’t Stop Misty Blue Foster in Serving Others
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the…
ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012
Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…
Joanna Burgess – Joy’s Way – A Journey of Survival, Hope and Inspiration
Editor’s Note: Courage to Shine™ is honored to present the original story of Joanna Burgess’s amazing and inspirational life. Joanna originally submitted the following story to be published in a major national magazine, but the magazine elected not to publish it, however their loss is Courage to Shine’s gain. Joanna Burgess is a nurse, a cancer survivor, a wife and…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
THOMAS EXLER – Founder & Chairman of Courage to Shine
Note: In 2012, John Walsh from Stomawise website: http://www.stomawise.co.uk/ which is based in the United Kingdom, invited Thomas Exler to write about his story for the My Story section of Stomawise website. The following below was submitted to be placed on the website, however it had to be edited due to the available space and here is the link the article up on the…
I Will Work And Find The Courage To Shine
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: Thomas Exler, the president of the Association for the Bladder Exstrophy Community (ABC) , also is the chairman and founder of Courage to Shine, an organization created to provide information for others, like Exler, who have found ways to overcome their problems and become successful people.…
No Mountain Is Too High To Climb When You Have Courage
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: Thomas Exler, the president of the Association for the Bladder Exstrophy Community (ABC) , also is the chairman and founder of Courage to Shine, an organization created to provide information for others, like Exler, who have found ways to overcome their problems and become successful people.…
