12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5 2012, 15-20 families living with bladder exstrophy, came together in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…
Tag: chronic illness
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
Jamie Holmes Founded Jamie’s Dream Team to Help Others
http://uromed.wordpress.com/2011/12/09/jamie-holmes-founded-jamies-dream-team-to-help-others/ UroMed Hometown Hero – Jamie Holmes Part 3 From the time I was very young, I knew I wanted to start a non-profit organization to help others. That’s why once I graduated from high school, I started Jamie’s Dream Team. I contacted an attorney my family knew, and she filed the paperwork to create Jamie’s…
Jamie Holmes of Jamie’s Dream Team Explains You Have to Know What Your Focus Is
http://uromed.wordpress.com/2011/12/06/jamie-holmes-of-jamies-dream-team-explains-you-have-to-know-what-your-focus-is/ UroMed Hometown Hero – Jamie Holmes Part 1 – Originally Posted DECEMBER 6, 2011 Hi, my name is Jamie Holmes. I’m 24-years old and live with a condition called V.A.T.E.R. Syndrome, which was diagnosed in utero. I have endured over 42 surgeries in my life, with the surgeries starting at the time of my birth, to reconstruct my…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 3 of 3 – Including The Short Film “The Night Before”
Part 1 – “A Life of Long Odds” Part 2 – “A Life of Long Odds” Editor’s Note: This is the final part of a 3 part series by James Cole – A Life of Long Odds – and we at Courage to Shine would like to thank James for showing the courage to help inspire us and…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 2 of 3
Part 1 – “A Life of Long Odds “A LIFE OF LONG ODDS” Part 2 of 3 By James Cole After moving to Cape Cod and starting a new life, I felt reborn. I had many new friends, a renewed passion for my filmmaking, art, and even acting – participating in two high school…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 1 of 3
“A Life of Long Odds” Part 1 of 3 By James Cole I was born on an August day in 1966 with a birth defect the doctors at our local hospital could not identify. My parents were only told that my bladder was on the outside, and that I was in critical condition. It wasn’t…
Megg Rose – Inspirational Story of Triumphing over Medical Adversity – Part 1 of 3
Editor’s Note from Thomas Exler: I first met Megg Rose in 1996 in Boulder, Colorado while attending a medical based camp program, and over the years we have continued to stay in touch, and no matter if she was shooting a TV Movie or competing in pageants, or raising her family. If you wanted to…
JAMIE HOLMES-WARD – Jamie’s Dream Team
DREAMS BY HOLMES, A YOUNG LADY WHO TRULY MAKES DREAMS COME TRUE. By Thomas Exler Twenty-four year old Jamie Holmes, from White Oak, Pennsylvania has been named as the first Courage to Shine™ – Role Model of the Month for the Courage to Shine™ program. Jamie has earned this recognition because she has turned her…
