You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Tag: Children’s Hospital
Micheal Dickman – From Australia
Michael Dickman – From Australia
Janet Rankin – Triumph Over Adversity Down Under
Janet Rankin – Triumph Over Adversity Down Under
2016 Courage To Shine ™ – Brittney Freeman – July 9 2016
Read more about: Brittney Freeman – Teaching Others To Shine!! Click Here 2016 Courage to Shine™ Lisha Martinez & Adam Young Award . Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016. Read more about: Brittney Freeman – Teaching Others To Shine!! Click Here Brittney Nichole Freeman is…
Jon Pierroz – Adversity to Triumph
Jon Pierroz – Adversity to Triumph Jon Pierroz interview by Courage to Shine™ and he just got married this month. Classic Bladder Exstrophy Email to Jon: Jon@courage-to-shine.org Please read Courage-to-Shine.org disclaimer!
Erin Kavanagh – Being Secure & Sure of Oneself is a Beautiful Thing
Note: “Being Secure & Sure of Oneself is a Beautiful Thing” originally appeared in Ostomy Canada Magazine in the Winter 2015 Issue on pages 52-53, 56. It is used under permission from Ostomy Canada Magazine which is the official magazine of Ostomy Canada. Being Secure & Sure of Oneself is a Beautiful Thing By Erin Kavanagh I…
Jessica Sanchez – Embracing Bladder Exstrophy
Embracing Bladder Exstrophy By Jessica Sanchez My name is Jessica Sanchez. I am 26 years old, born and raised in Washington State and I was born with classic bladder exstrophy. But bladder exstrophy is not who I am, it’s just a part of me. I am a daughter, a sister, a mother, a wife, a…
Emily Broeren Kohlman – My Journey!!!
By Emily Broeren First and foremost, my name is Emily Rose Broeren. I am 23 years old, 5 foot 4, and have blonde hair and blue eyes. I was born and raised in Kaukauna, Wisconsin, but now live in Massillon, Ohio. My family means a great deal to me and are some of the most…
Kiersten Kelly – An Angel’s voice overcoming adversity – Part 2 of 2 – The Interview
Editor’s Note: I (Thomas Exler) had the pleasure of meeting Kiersten Kelly at a fundraiser for Jamie’s Dream Team on March 23, 2013, and I was so impressed with her, not only the way she presented herself, but also in her vocal talent, so please sit back and enjoy this amazing story from an international YouTube sensation Kiersten Kelly. This is…
Kiersten Kelly – An Angel’s voice overcoming adversity – Part 1 of 2
Editor’s Note: I (Thomas Exler) had the pleasure of meeting Kiersten Kelly at a fundraiser for Jamie’s Dream Team on March 23, 2013, and I was so impressed with her, not only the way she presented herself, but also in her vocal talent, so please sit back and enjoy this amazing story from an international YouTube sensation…
Leonard H. Newton Jr. – “You may knock me down, but I will never fall”
Editor’s Note: Courage to Shine™ Team Members first came across Leonard at a conference in 2009, and we were so impressed with Leonard that we are so honored to have the chance to present Leonard Newton’s story here on Courage to Shine™ . “You may knock me down, but I will never fall” By Leonard…
World Rare Disease Day – February 28, 2013
The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA. – WORLD RARE DISEASE DAY – FEBRUARY 28, 2013 For more information click on the fliers below are go to http://rarediseaseday.us/ Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National…
Courage to Shine™ – Tour III – Spain – November 2012
Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…
News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012
Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 Pittsburgh, PA, USA, November 5, 2012: Courage to Shine™ Team lead by Thomas Exler, president of the Association for the Bladder Exstrophy Community (ABC) and founder & chairman of Courage to Shine™ along with team member Misty Blue Foster, LVN,…
12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012
12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5 2012, 15-20 families living with bladder exstrophy, came together in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Joanna Burgess–Joy’s Way–A Journey of Survival, Hope and Inspiration – Reposted June 9 2012
Editor’s Note: In honor of Joanna Burgess being honored tonight (June 9, 2012) in Charlotte, North Carolina as this year’s Great Comebacks® National Award recipient, we at Courage to Shine would like to re-post her original story “Joy’s Way – A Journey of Survival, Hope and Inspiration” Originally Published on March 24, 2012: Courage to Shine™ is honored to present the original story of…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…