You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Tag: Thomas Exler
World Rare Disease Day – February 28, 2013
The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA. – WORLD RARE DISEASE DAY – FEBRUARY 28, 2013 For more information click on the fliers below are go to http://rarediseaseday.us/ Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National…
Courage to Shine™ – Tour III – Spain – November 2012
Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…
News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012
Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 Pittsburgh, PA, USA, November 5, 2012: Courage to Shine™ Team lead by Thomas Exler, president of the Association for the Bladder Exstrophy Community (ABC) and founder & chairman of Courage to Shine™ along with team member Misty Blue Foster, LVN,…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…
Natalia from Moscow – Mother’s Love for Daughter Has Helped Many Families All Over Russia
Courage to Shine Editor: Today we have a story from a young mother, Natalia Mayorova, from Moscow, Russia. Who’s love for her daughter, has turned that love into a project that has helped many families all over Russia and around the world. Sometimes in life it is just the little extra things that can make…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
THOMAS EXLER – Founder & Chairman of Courage to Shine
Note: In 2012, John Walsh from Stomawise website: http://www.stomawise.co.uk/ which is based in the United Kingdom, invited Thomas Exler to write about his story for the My Story section of Stomawise website. The following below was submitted to be placed on the website, however it had to be edited due to the available space and here is the link the article up on the…
I Will Work And Find The Courage To Shine
http://uromed.wordpress.com/2012/01/30/i-will-work-and-find-the-courage-to-shine/ From UroMed Hometown Heroes – Originally posted on January 30, 2012 For the first year or two of Courage to Shine’s existence, our main goal is to reach out to people with urinary defects. We’ll also have articles about other types of challenges and the people who have had these problems and still have achieved great things…
No Mountain Is Too High To Climb When You Have Courage
http://uromed.wordpress.com/2012/01/28/no-mountain-is-too-high-to-climb-when-you-have-courage/ From UroMed Hometown Heroes – Originally posted on January 28, 2012 Courage to Shine was created to help people who have medical challenges see that the only walls between where we are, and where we want to go, are the walls we put up. Once, I heard a speaker say, “When I became paralyzed, I didn’t spend…
A “You Can” Attitude Helps Children with Disabilities Find the Courage to Shine
http://uromed.wordpress.com/2012/01/27/a-you-can-attitude-helps-children-with-disabilities-find-the-courage-to-shine/ From UroMed Hometown Heroes – Originally posted on January 27, 2012 When parents learn that their children have a medical issue like bladder exstrophy, often their dreams for those children cease, and the parents suffer along with the children. However, on the front page of the Courage to Shine website, we can show parents what their children…
Life’s Great Possibilities Await For People With Disabilities Who Find The Courage To Shine
http://uromed.wordpress.com/2012/01/26/the-great-possibilities-in-life-for-people-with-disabilities-who-find-the-courage-to-shine/ From UroMed Hometown Heroes – Originally posted on January 26, 2012 Exler: Courage to Shine, a new project we created, was originally created to be an awards program to honor outstanding people, especially those with bladder exstrophy. We wanted to honor accomplishments in society and in the greater world. As we developed the idea, we thought that a better…
Courage Is The Key To Overcome Fear With Thomas Exler
http://uromed.wordpress.com/2012/01/25/courage-is-the-key-to-overcome-fear-with-thomas-exler/ From UroMed Hometown Heroes – Originally posted on January 25, 2012 I’m often asked, “Why is a support group so important for an individual who has a physical challenge to overcome?” The only way to get courage is to face your fears and overcome them. The benefits of courage are success, happiness and bravery. Most people run away from fear….
Happy New Year’s and Welcome to Courage to Shine
Welcome to Courage to Shine and our New website at http://www.courage-to-shine.org!! Courage to Shine other sites: Courage to Shine YouTube Site: http://www.youtube.com/couragetoshine Courage to Shine Facebook Site: http://www.facebook.com/pages/COURAGE-TO-SHINE/104427046255572 Courage To Shine ™ a website that will contain some of the most inspirational stories of people overcoming medical challenges and “Turning Adversity to Triumph.” ***************************** Courage To Shine ™, Turning Adversity to…
