Kylee Hunter- You Can Call Me “Smiley Kylee”


You Can Call Me “Smiley Kylee”  By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…

World Rare Disease Day – February 28, 2013


The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA. – WORLD RARE DISEASE DAY – FEBRUARY 28, 2013 For more information click on the fliers below are go to http://rarediseaseday.us/                  Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National…

Courage to Shine™ – Tour III – Spain – November 2012


Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…

Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes


Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at  http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…

Family Campouts for Bladder Exstrophy


Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…

THOMAS EXLER – Founder & Chairman of Courage to Shine


Note: In 2012, John Walsh from  Stomawise website:  http://www.stomawise.co.uk/ which is based in the United Kingdom, invited Thomas Exler to write about his story for the My Story section of Stomawise website. The following  below was submitted to be placed on the website, however it had to be edited due to the available space and here is the link the article up on the…

A “You Can” Attitude Helps Children with Disabilities Find the Courage to Shine


http://uromed.wordpress.com/2012/01/27/a-you-can-attitude-helps-children-with-disabilities-find-the-courage-to-shine/ From UroMed Hometown Heroes – Originally posted on January 27, 2012 When parents learn that their children have a medical issue like bladder exstrophy, often their dreams for those children cease, and the parents suffer along with the children. However, on the front page of the Courage to Shine website, we can show parents what their children…

Life’s Great Possibilities Await For People With Disabilities Who Find The Courage To Shine


http://uromed.wordpress.com/2012/01/26/the-great-possibilities-in-life-for-people-with-disabilities-who-find-the-courage-to-shine/ From UroMed Hometown Heroes – Originally posted on January 26, 2012 Exler: Courage to Shine, a new project we created, was originally created to be an awards program to honor outstanding people, especially those with bladder exstrophy. We wanted to honor accomplishments in society and in the greater world. As we developed the idea, we thought that a better…

Courage Is The Key To Overcome Fear With Thomas Exler


http://uromed.wordpress.com/2012/01/25/courage-is-the-key-to-overcome-fear-with-thomas-exler/ From UroMed Hometown Heroes – Originally posted on January 25, 2012 I’m often asked, “Why is a support group so important for an individual who has a physical challenge to overcome?” The only way to get courage is to face your fears and overcome them. The benefits of courage are success, happiness and bravery. Most people run away from fear….

Happy New Year’s and Welcome to Courage to Shine


Welcome to Courage to Shine and our New website at http://www.courage-to-shine.org!! Courage to Shine other sites:  Courage to Shine YouTube Site: http://www.youtube.com/couragetoshine Courage to Shine Facebook Site: http://www.facebook.com/pages/COURAGE-TO-SHINE/104427046255572 Courage To Shine ™ a website that will contain some of the most inspirational stories of people overcoming medical challenges and “Turning Adversity to Triumph.” ***************************** Courage To Shine ™, Turning Adversity to…