The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA.

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WORLD RARE DISEASE DAY – FEBRUARY 28, 2013

For more information click on the fliers below are go to http://rarediseaseday.us/

Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National Organization for Rare Disorders)

World Rare Disease Day – 2012 Official Video

For Rare Disease Day Events in your area please click here

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If you live near Pittsburgh, Pennsylvania:

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Thomas Exler, President of the Association for the Bladder Exstrophy Community (ABC) will be speaking at a World Rare Disease Day event on February 28, 2013

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Jamie’s Dream Team / The Global Genes Project / RARE Meetup for World RARE disease Day

Thursday February 28 2013

St. Raphael’s School’s – Multi-Purpose Room

1154 Chislett St

Pittsburgh, PA 15206

7:00 PM to 9:00 PM

“In Your Own Genes, Be Yourself”

For more information please go to: http://jamiesdreamteam.myfastsite.net/events/rare-meetup/