The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA.
WORLD RARE DISEASE DAY – FEBRUARY 28, 2013
For more information click on the fliers below are go to http://rarediseaseday.us/
Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National Organization for Rare Disorders)
World Rare Disease Day – 2012 Official Video
For Rare Disease Day Events in your area please click here
If you live near Pittsburgh, Pennsylvania:
Thomas Exler, President of the Association for the Bladder Exstrophy Community (ABC) will be speaking at a World Rare Disease Day event on February 28, 2013
Jamie’s Dream Team / The Global Genes Project / RARE Meetup for World RARE disease Day
Thursday February 28 2013
St. Raphael’s School’s – Multi-Purpose Room
7:00 PM to 9:00 PM
“In Your Own Genes, Be Yourself”
For more information please go to: http://jamiesdreamteam.myfastsite.net/events/rare-meetup/
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