Dilara Arslan – A Scientist from Istanbul, Turkey


Dilara Arslan – A Scientist from Istanbul, Turkey By Dilara Arslan Hi Everybody, I am Dilara from Turkey.  I was born as likes some of you with a bladder exstrophy in 1991, İstanbul, Turkey.  To treatment of my bladder exstrophy was needed a series of operation since my born. I don’t remember my early ages….

Damon Little


Damon Little Damon Little is a National Gospel and Grammy Winner Artist, I (Thomas Exler) ran into his at the United Ostomy Associations Conference.  During his childhood he has many surgeries and live with a colostomy for years. Damon Little: http://www.damonlittle.com/ Damon Little/ Be Alright-2019: https://youtu.be/3jFWCwXaA-c Courage To Shine™, Turning Adversity to Triumph, Courage to…

Kaitlin Morris – Finding Bravery in Unexpected Places


Note: I first met Kaitlin, when I came to Sydney, New South Wales, Australia to speak at the 2010 BEECH Australian Community Conference in June, 2010 – Thomas Exler YouTube: Mrs. Morris  Finding Bravery in Unexpected Places By Kaitlin Morris Hi there, I am Kaitlin (Sheedy) Morris,  I was born on April 15, 1992 with classic…

Matt Elkins – Angling over Adversity


Angling over Adversity By Matt Elkins My name is Matt Elkins; I’m 40 years old; I’m married; I live in Spencerville, Ohio; I’m an environmental specialist by trade; and I have a passion for hunting and tournament bass fishing. That pretty much sums me up in as few words as possible. What is missing from…

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016


Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here 2016 Courage to Shine™ Lisha Martinez & Adam Young Award . Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016. Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here Brittney Nichole Freeman is…

Rachel Fisher – Turning Fear Into Confidence


Turning Fear Into Confidence By Rachel Fisher, My name is Rachel Fisher, I’m 23 years old and I was born with classic bladder exstrophy.  My life began in New Bern, North Carolina in 1992.  My medical experience started with an immediate closure, reclosure and bladder neck reconstruction.  Unfortunately, at age four I developed blockages in…

World Rare Disease Day – February 28, 2013


The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA. – WORLD RARE DISEASE DAY – FEBRUARY 28, 2013 For more information click on the fliers below are go to http://rarediseaseday.us/                  Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National…

Courage to Shine™ – Tour III – Spain – November 2012


Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…

12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012


12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5  2012, 15-20 families living with bladder exstrophy, came  together  in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…

4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012


4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…

Joanna Burgess–Joy’s Way–A Journey of Survival, Hope and Inspiration – Reposted June 9 2012


Editor’s Note: In honor of Joanna Burgess being honored tonight (June 9, 2012) in Charlotte, North Carolina as this year’s  Great Comebacks® National Award recipient, we at Courage to Shine would like to re-post her original story “Joy’s Way – A Journey of Survival, Hope and Inspiration” Originally Published on March 24, 2012:  Courage to Shine™ is honored to present the original story of…

Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes


Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at  http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…