2027 BEST Campout, July 29 – August 3, 2027 Tahoe Vallley Campground South Lake Tahoe Everyone with Bladder Exstrophy or related conditions in invited to attend, along with their families Join us for excellent speakers, activities for the entire family, crafts for the young ones, organized dinners every night, s’mores by the campfire, games, and the kindness and love you could ever want in a support group. for updated information please visit www,besupportteam.org
Tag: California Bladder Exstrophy Support Team
Tommy Ludlow – Climb up to Mt. Everest Base Camp!!
Tommy Ludlow – Climb up to Mt. Everest Base Camp!! 12-year-old Folsom boy climbs Mount Everest despite medical condition Tommy was born with exstrophy, a rare condition that occurs in about 1 of every 50,000 living births, according to the Urology Care Foundation. Author: Frances Wang Published: 3:13 PM PST January 2, 2018 As the Ludlow…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
