2018 International Exstrophy Conference in Cincinnati, Ohio, USA


2018 International Exstrophy Conference in Cincinnati, Ohio, USA Save the dates now! The 2018 International Exstrophy Conference will be at the Cincinnati Children’s Hospital on Thursday, June, 7 through Saturday, June 9, 2018.   More details to be announced in the coming months. Website: The Association for The Bladder Exstrophy – 2018 International Exstrophy Conference  Please note that this…

Kylee Hunter- You Can Call Me “Smiley Kylee”


You Can Call Me “Smiley Kylee”  By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…

Matt Elkins – Angling over Adversity


Angling over Adversity By Matt Elkins My name is Matt Elkins; I’m 40 years old; I’m married; I live in Spencerville, Ohio; I’m an environmental specialist by trade; and I have a passion for hunting and tournament bass fishing. That pretty much sums me up in as few words as possible. What is missing from…

2016 International Exstrophy Conference In Oklahoma City, OK, USA


Friday July 8 – Sunday July 10, 2016 Save the dates: July 8-10, 2016! Plan to join the A-BE-C community of families and health care providers for three days in Oklahoma City this coming July! The 2016 event is hosted by A-BE-C in partnership with the University of Oklahoma Children’s Physicians. Venue Details coming soon Oklahoma City, OK United…

The 2016 B.E.S.T. (Bladder Exstrophy Support Team) Campout


Friday August 5 to Sunday August  7, 2016 Location: Campground By The Lake, South Lake Tahoe, CA, USA Address: 1150 Rufus Allen Blvd, South Lake Tahoe, CA 96150, USA IF you’d like to stay in a hotel, accommodations are close by.  Inn by the Lake – This hotel is very nice and it’s almost across the street…

Courage to Shine™ – Tour III – Spain – November 2012


Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…

12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012


12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5  2012, 15-20 families living with bladder exstrophy, came  together  in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…

4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012


4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…

Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes


Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at  http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…

ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012


Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…