2019 International Exstrophy Conference in Los Angeles, California, USA Save the dates now! The 2019 International Exstrophy Conference will be at the Children’s Hospital Los Angeles on Friday, June, 28 through Sunday, June 30, 2018. More details to be announced in the coming months. Website: The Association for The Bladder Exstrophy – 2019 International Exstrophy Conference More details…
Tag: Cloacal Exstrophy
Cloacal Exstrophy
Kylee Hunter- You Can Call Me “Smiley Kylee”
You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Matt Elkins – Angling over Adversity
Angling over Adversity By Matt Elkins My name is Matt Elkins; I’m 40 years old; I’m married; I live in Spencerville, Ohio; I’m an environmental specialist by trade; and I have a passion for hunting and tournament bass fishing. That pretty much sums me up in as few words as possible. What is missing from…
Janet Rankin – Triumph Over Adversity Down Under
Janet Rankin – Triumph Over Adversity Down Under
2016 International Exstrophy Conference In Oklahoma City, OK, USA
Friday July 8 – Sunday July 10, 2016 Save the dates: July 8-10, 2016! Plan to join the A-BE-C community of families and health care providers for three days in Oklahoma City this coming July! The 2016 event is hosted by A-BE-C in partnership with the University of Oklahoma Children’s Physicians. Venue Details coming soon Oklahoma City, OK United…
The 2016 B.E.S.T. (Bladder Exstrophy Support Team) Campout
Friday August 5 to Sunday August 7, 2016 Location: Campground By The Lake, South Lake Tahoe, CA, USA Address: 1150 Rufus Allen Blvd, South Lake Tahoe, CA 96150, USA IF you’d like to stay in a hotel, accommodations are close by. Inn by the Lake – This hotel is very nice and it’s almost across the street…
Courage to Shine™ – Tour III – Spain – November 2012
Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…
News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012
Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 Pittsburgh, PA, USA, November 5, 2012: Courage to Shine™ Team lead by Thomas Exler, president of the Association for the Bladder Exstrophy Community (ABC) and founder & chairman of Courage to Shine™ along with team member Misty Blue Foster, LVN,…
12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012
12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5 2012, 15-20 families living with bladder exstrophy, came together in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…
Natalia from Moscow – Mother’s Love for Daughter Has Helped Many Families All Over Russia
Courage to Shine Editor: Today we have a story from a young mother, Natalia Mayorova, from Moscow, Russia. Who’s love for her daughter, has turned that love into a project that has helped many families all over Russia and around the world. Sometimes in life it is just the little extra things that can make…
Misty Blue Foster was Honest and Open About Her Disability When Love Came
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Misty Blue Foster Took a Giant Step Backwards to Reach Her Dream but Stayed Strong
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Spina Bifida (& Cloacal Exstrophy) Doesn’t Stop Misty Blue Foster in Serving Others
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the…
Misty Blue Foster’s Difficult Early Life Lead to Her Nursing Motivation
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Misty Blue Foster: Becoming a Nurse While Overcoming Spina Bifida
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012
Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…
