You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Tag: Crohn’s
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 3 of 3 – Including The Short Film “The Night Before”
Part 1 – “A Life of Long Odds” Part 2 – “A Life of Long Odds” Editor’s Note: This is the final part of a 3 part series by James Cole – A Life of Long Odds – and we at Courage to Shine would like to thank James for showing the courage to help inspire us and…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 2 of 3
Part 1 – “A Life of Long Odds “A LIFE OF LONG ODDS” Part 2 of 3 By James Cole After moving to Cape Cod and starting a new life, I felt reborn. I had many new friends, a renewed passion for my filmmaking, art, and even acting – participating in two high school…
Megg Rose – Inspirational Story of Triumphing over Medical Adversity – Part 3 of 3
Editor’s Note from Thomas Exler: I first met Megg Rose in 1996 in Boulder, Colorado while attending a medical based camp program, and over the years we have continued to stay in touch, and no matter if she was shooting a TV Movie or competing in pageants, or raising her family. If you wanted to…
Megg Rose – Inspirational Story of Triumphing over Medical Adversity – Part 1 of 3
Editor’s Note from Thomas Exler: I first met Megg Rose in 1996 in Boulder, Colorado while attending a medical based camp program, and over the years we have continued to stay in touch, and no matter if she was shooting a TV Movie or competing in pageants, or raising her family. If you wanted to…
JAMIE HOLMES-WARD – Jamie’s Dream Team
DREAMS BY HOLMES, A YOUNG LADY WHO TRULY MAKES DREAMS COME TRUE. By Thomas Exler Twenty-four year old Jamie Holmes, from White Oak, Pennsylvania has been named as the first Courage to Shine™ – Role Model of the Month for the Courage to Shine™ program. Jamie has earned this recognition because she has turned her…
Courage to Shine™ 