Tommy Ludlow – Climb up to Mt. Everest Base Camp!! 12-year-old Folsom boy climbs Mount Everest despite medical condition Tommy was born with exstrophy, a rare condition that occurs in about 1 of every 50,000 living births, according to the Urology Care Foundation. Author: Frances Wang Published: 3:13 PM PST January 2, 2018 As the Ludlow…
Tag: California
Kylee Hunter- You Can Call Me “Smiley Kylee”
You Can Call Me “Smiley Kylee” By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…
Janet Rankin – Triumph Over Adversity Down Under
Janet Rankin – Triumph Over Adversity Down Under
12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012
12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5 2012, 15-20 families living with bladder exstrophy, came together in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…
Misty Blue Foster was Honest and Open About Her Disability When Love Came
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Misty Blue Foster Took a Giant Step Backwards to Reach Her Dream but Stayed Strong
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
Spina Bifida (& Cloacal Exstrophy) Doesn’t Stop Misty Blue Foster in Serving Others
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the…
Misty Blue Foster’s Difficult Early Life Lead to Her Nursing Motivation
Originally posted on UroMed Catheter Health Blog:
Editor’s Note: The race of life is not a 100-yard sprint. Life is a marathon, a long distance run often over treacherous terrain that requires strength, endurance and single-mindedness of purpose. For many, just finishing the course is a major achievement. But others choose to endure the pain…
ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012
Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 3 of 3 – Including The Short Film “The Night Before”
Part 1 – “A Life of Long Odds” Part 2 – “A Life of Long Odds” Editor’s Note: This is the final part of a 3 part series by James Cole – A Life of Long Odds – and we at Courage to Shine would like to thank James for showing the courage to help inspire us and…
James Cole – Overcoming Adversity – “A Life of Long Odds” Part 2 of 3
Part 1 – “A Life of Long Odds “A LIFE OF LONG ODDS” Part 2 of 3 By James Cole After moving to Cape Cod and starting a new life, I felt reborn. I had many new friends, a renewed passion for my filmmaking, art, and even acting – participating in two high school…
Megg Rose – Inspirational Story of Triumphing over Medical Adversity – Part 3 of 3
Editor’s Note from Thomas Exler: I first met Megg Rose in 1996 in Boulder, Colorado while attending a medical based camp program, and over the years we have continued to stay in touch, and no matter if she was shooting a TV Movie or competing in pageants, or raising her family. If you wanted to…
Megg Rose – Inspirational Story of Triumphing over Medical Adversity – Part 1 of 3
Editor’s Note from Thomas Exler: I first met Megg Rose in 1996 in Boulder, Colorado while attending a medical based camp program, and over the years we have continued to stay in touch, and no matter if she was shooting a TV Movie or competing in pageants, or raising her family. If you wanted to…
Enrique Escajada – Aerialist Overcomes Adversity to Fly
Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello, My name Is Enrique Escajeda and I was born with Bladder Exstrophy. For those that don’t know bladder exstrophy is when a person is born with their bladder on the outside of the body. It’s a complicated ailment that demands many surgeries especially throughout childhood. The…
