Editor’s Note: I (Thomas Exler) had the pleasure of meeting Kiersten Kelly at a fundraiser for Jamie’s Dream Team on March 23, 2013, and I was so impressed with her, not only the way she presented herself, but also in her vocal talent, so please sit back and enjoy this amazing story from an international YouTube sensation…
Tag: Children’s Hospital
Leonard H. Newton Jr. – “You may knock me down, but I will never fall”
Editor’s Note: Courage to Shine™ Team Members first came across Leonard at a conference in 2009, and we were so impressed with Leonard that we are so honored to have the chance to present Leonard Newton’s story here on Courage to Shine™ . “You may knock me down, but I will never fall” By Leonard…
World Rare Disease Day – February 28, 2013
The Association for the Bladder Exstrophy Community (ABC) for the first time has become a partner for World Rare Disease Day in the USA. – WORLD RARE DISEASE DAY – FEBRUARY 28, 2013 For more information click on the fliers below are go to http://rarediseaseday.us/ Bladder Exstrophy is one of about 7,000 rare diseases listed by NORD (National…
Courage to Shine™ – Tour III – Spain – November 2012
Courage to Shine™ – Tour III – Spain – ASEXVE Medical Conference, Avila, Spain – November 23-25, 2012 News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 In early 2012, Thomas Exler and Mist Blue Foster were invited to attend and to speak at the ASEXVE (Asociación española…
News Release: Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012
Courage to Shine™ Team to Attend ASEXVE Medical Conference in Avila, Spain from November 23 –25, 2012 Pittsburgh, PA, USA, November 5, 2012: Courage to Shine™ Team lead by Thomas Exler, president of the Association for the Bladder Exstrophy Community (ABC) and founder & chairman of Courage to Shine™ along with team member Misty Blue Foster, LVN,…
12th Annual California Bladder Exstrophy Support Team Campout – August 3 – 5, 2012
12th Annual California Bladder Exstrophy Support Team Campout Friday August 3 – Sunday August 5, 2012 Campground by the Lake, South Lake Tahoe, California, USA By Thomas Exler This past August 3-5 2012, 15-20 families living with bladder exstrophy, came together in South Lake Tahoe, California, for the 12th Annual California Bladder Exstrophy Support Team (B.E.S.T.)…
4th Annual ABC Great Lakes Chapter Campout – July 20-22, 2012
4th Annual ABC Great Lakes Chapter Campout Friday July 20 – Sunday July 22, 2012 Eby’s Pines RV Park & Campground, Bristol, Indiana, USA In late July 2012, Alice Ambrose of Michigan, along with her husband Brad Ambrose were honored to again be the hosts for the 4th Annual ABC Great Lakes Chapter Campout, at Eby’s…
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012
MISTY BLUE FOSTER – Courage To Shine™ – Role Model of the Month for June 2012 Courage to Shine Editor: Misty Blue Foster has been named the June 2012, Courage To Shine Role Model for the month. After you take the time to read her inspirational story below, you will totally understand why Courage to…
Joanna Burgess–Joy’s Way–A Journey of Survival, Hope and Inspiration – Reposted June 9 2012
Editor’s Note: In honor of Joanna Burgess being honored tonight (June 9, 2012) in Charlotte, North Carolina as this year’s Great Comebacks® National Award recipient, we at Courage to Shine would like to re-post her original story “Joy’s Way – A Journey of Survival, Hope and Inspiration” Originally Published on March 24, 2012: Courage to Shine™ is honored to present the original story of…
Jamie Holmes – Jamie’s Dream Team Presents – ‘Beyond Belief’ – Posting by UroMed on the event at UroMed Hometown Heroes Blog Site
Jamie Holmes – Courage to Shine Role Model of the Month for January 2012. On Sunday May 20, 2012 Jamie and her entire Jamie’s Dream Team held an event called Jamie’s Dream Team Presents – ‘Beyond Belief’ at the Hollywood Theater in Dormont, PA. The evening was an amazing success!!! Below is a release from…
Misty Blue Foster & Jamie Holmes Featured in eBook Honoring the Best of UroMed Hometown Heroes
Misty Blue Foster and Jamie Holmes, two of Courage to Shine Role Models of the Month, have had their stories published by UroMed Hometown Heroes Blogg converted along with 14 others into eBook: Courage: Stories of Hometown Heroes which can be purchased on Amazon.com at http://www.amazon.com/Courage-Stories-Hometown-Heroes-ebook/dp/B007WU2RX4/ref=sr_1_1?ie=UTF8&qid=1335785891&sr=8-1 UroMed Launches E-book on Hometown Heroes Overcoming Disabilities MAY 2, 2012 LEAVE A…
Natalia from Moscow – Mother’s Love for Daughter Has Helped Many Families All Over Russia
Courage to Shine Editor: Today we have a story from a young mother, Natalia Mayorova, from Moscow, Russia. Who’s love for her daughter, has turned that love into a project that has helped many families all over Russia and around the world. Sometimes in life it is just the little extra things that can make…
ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012
Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…
Joanna Burgess – Joy’s Way – A Journey of Survival, Hope and Inspiration
Editor’s Note: Courage to Shine™ is honored to present the original story of Joanna Burgess’s amazing and inspirational life. Joanna originally submitted the following story to be published in a major national magazine, but the magazine elected not to publish it, however their loss is Courage to Shine’s gain. Joanna Burgess is a nurse, a cancer survivor, a wife and…
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families:
2012 List of Camp and Campout Programs for Exstrophy Kids, Teens and Families By Thomas Exler For about the last 6 or 7 years or so each spring, I have been putting together a list of camps and programs for families living with bladder exstrophy. It originally started out as an e-mail, but this year it will…
Family Campouts for Bladder Exstrophy
Family Campouts for Bladder Exstrophy By Thomas Exler Each year there are two family campouts for Bladder Exstrophy held in the USA, one in South Lake Tahoe, California and the other one in Northern Indiana In August of 2002, I was invited as a guest speaker to attend the 2002 California Bladder Exstrophy Support Team…
Courage to Shine™ 