Kylee Hunter- You Can Call Me “Smiley Kylee”


You Can Call Me “Smiley Kylee”  By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…

Alice Ambrose – Featured as a UroMed Hometown Hero


Alice Ambrose a long time friend of the Association for the Bladder Exstrophy Community was featured as a UroMed Hometown Hero on the UroMed blog from May 14 – 20, 2012 at http://www.uromed.com/blog/ Below are the links to the articles written by John Phillips and posted on the UroMed Hometown Heroes Blog site: PART 1 of…

ENRIQUE ESCAJADA – Courage To Shine™ – Role Model of the Month for March 2012


Enrique Escajeda of California has been named the March 2012 – Courage to Shine – Role Model of the Month. In his honor we have reprinted his story below from January 26, 2012 ———————————————————————– Enrique Escajada – Aerialist Overcomes Adversity to Fly Published on January 26, 2012 Aerialist Overcomes Adversity to Fly by Enrique Escajeda Hello,…

THOMAS EXLER – Founder & Chairman of Courage to Shine


Note: In 2012, John Walsh from  Stomawise website:  http://www.stomawise.co.uk/ which is based in the United Kingdom, invited Thomas Exler to write about his story for the My Story section of Stomawise website. The following  below was submitted to be placed on the website, however it had to be edited due to the available space and here is the link the article up on the…