My name is Rachel Althizer. I’m 32 years old and I was bon with classic bladder exstrophy. I was born in New Berm, a small town in Eastern North Carolina in 1992. My medical journey began with an emergency ambulance ride to a larger hospital immediately after birth. I underwent immediate closure, reclosure, bladder neck reconstruction, and an osteotomy. At age four, I had major surgery to create a neobladder using my intestines and a mitrofanoff using my appendix. Since then, I’ve been healthy and fully continent, with only a few procedures and surgeries.

After a childhood filled with competitive soccer, school and typical teenage drama. I earned a bachelor’s degree in psychology and a master’s degree in social work. My husband and I have been married since 2020 and live in our hometown where we see our parents, siblings, nieces and nephews frequently.

Throughout my life, I’ve developed a passion for helping and connecting with others. I’ve had the privilege of attending the International Bladder Exstrophy Collaborative Workshop in India twice, in 2023 and 2024. The doctors, nurses, Pam, and everyone involved in the workshop make a significant difference in every single patient’s life , from life-changing surgeries to simply taking the time to explain bladder exstrophy.. I hope my parents, and patients that they can lead fulfilling lives despite being born with bladder exstrophy.

I serve on the Bladder Exstrophy Patient Advisory Board, which aims to connect and provides resources for adult BE patients. I’m honored to be part of this community and look forward to connecting with more patients and families.