Kylee Hunter- You Can Call Me “Smiley Kylee”


You Can Call Me “Smiley Kylee”  By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…

2017 International Exstrophy Conference In Philadelphia, Pennsylvania, USA


2017 International Exstrophy Conference In Philadelphia, Pennsylvania, USA Save the dates now! The 2017 International Exstrophy Conference will be at the Children’s Hospital of Philadelphia on Friday, June 9 through Sunday, June 11. More details to be announced in the coming months. Website: The Association for The Bladder Exstrophy – 2017 International Exstrophy Conference    From…

Matt Elkins – Angling over Adversity


Angling over Adversity By Matt Elkins My name is Matt Elkins; I’m 40 years old; I’m married; I live in Spencerville, Ohio; I’m an environmental specialist by trade; and I have a passion for hunting and tournament bass fishing. That pretty much sums me up in as few words as possible. What is missing from…

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016


Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here 2016 Courage to Shine™ Lisha Martinez & Adam Young Award . Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016. Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here Brittney Nichole Freeman is…

Mindi Plumley Thayer – Triumphing Over Exstrophy


Triumphing Over Exstrophy By Mindi Plumley Thayer I was born on April 17, 1982 at 3:43 pm. I was the first child of two for my parents Dale and Nina Plumley. At birth the doctors thought I had a hernia. When they went in to repair the hernia they discovered that I had classic bladder exstrophy….

Rachel Fisher – Turning Fear Into Confidence


Turning Fear Into Confidence By Rachel Fisher, My name is Rachel Fisher, I’m 23 years old and I was born with classic bladder exstrophy.  My life began in New Bern, North Carolina in 1992.  My medical experience started with an immediate closure, reclosure and bladder neck reconstruction.  Unfortunately, at age four I developed blockages in…

Jessica Sanchez – Embracing Bladder Exstrophy


Embracing Bladder Exstrophy By Jessica Sanchez My name is Jessica Sanchez.  I am 26 years old, born and raised in Washington State and I was born with classic bladder exstrophy.  But bladder exstrophy is not who I am, it’s just a part of me.  I am a daughter, a sister, a mother, a wife, a…

Alice Ambrose – Featured as a UroMed Hometown Hero


Alice Ambrose a long time friend of the Association for the Bladder Exstrophy Community was featured as a UroMed Hometown Hero on the UroMed blog from May 14 – 20, 2012 at http://www.uromed.com/blog/ Below are the links to the articles written by John Phillips and posted on the UroMed Hometown Heroes Blog site: PART 1 of…