Kaitlin Morris – Finding Bravery in Unexpected Places


Note: I first met Kaitlin, when I came to Sydney, New South Wales, Australia to speak at the 2010 BEECH Australian Community Conference in June, 2010 – Thomas Exler YouTube: Mrs. Morris  Finding Bravery in Unexpected Places By Kaitlin Morris Hi there, I am Kaitlin (Sheedy) Morris,  I was born on April 15, 1992 with classic…

2019 International Exstrophy Conference in Los Angeles, California, USA


2019 International Exstrophy Conference in Los Angeles, California, USA Save the dates now! The 2019 International Exstrophy Conference will be at the Children’s Hospital Los Angeles on Friday, June, 28 through Sunday, June 30, 2018. More details to be announced in the coming months. Website: The Association for The Bladder Exstrophy – 2019 International Exstrophy Conference  More details…

Kylee Hunter- You Can Call Me “Smiley Kylee”


You Can Call Me “Smiley Kylee”  By Kylee Hunter You know your life will be interesting when one of the first words out of the doctor’s mouth at your birth is, “I think that’s a bladder”. My name is Kylee Hunter, I’m almost 18, and I was born with bladder exstrophy, a rare birth defect that…

The 2019 B.E.S.T. (Bladder Exstrophy Support Team) Campout


Friday, August 2 – Sunday, August 4, 2019 Location: Campground By The Lake, South Lake Tahoe, CA, USA Address: 1150 Rufus Allen Blvd, South Lake Tahoe, CA 96150, USA IF you’d like to stay in a hotel, accommodations are close by.  Hotel Azure Tahoe  – This hotel is very nice and it’s almost across the street from the…

2016 Courage To Shine ™ – Brittney Freeman – July 9 2016


Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here 2016 Courage to Shine™ Lisha Martinez & Adam Young Award . Brittney Freeman was presented with the 2016 Courage to Shine™ Lisha Marttinez & Adam Young Award on Saturday July 9 2016. Read more about: Brittney Freeman – Teaching Others To Shine!!  Click Here Brittney Nichole Freeman is…

2019 A-BE-C Great Lakes Chapter 11th Annual Summer Campout


2019 A-BE-C Great Lakes Chapter 11th Annual Summer Campout Friday, July 26 to Sunday, July 28, 2019 – You are invited to join us for a weekend campout with families dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias.  This is a great way to connect with other families, share in similar experiences and know…

Jon Pierroz – Adversity to Triumph


Jon Pierroz – Adversity to Triumph   Jon Pierroz interview by Courage to Shine™ and he just got married this month. Classic Bladder Exstrophy Email to Jon: Jon@courage-to-shine.org Please read Courage-to-Shine.org disclaimer!                    

Rachel Fisher – Turning Fear Into Confidence


Turning Fear Into Confidence By Rachel Fisher, My name is Rachel Fisher, I’m 23 years old and I was born with classic bladder exstrophy.  My life began in New Bern, North Carolina in 1992.  My medical experience started with an immediate closure, reclosure and bladder neck reconstruction.  Unfortunately, at age four I developed blockages in…

2016 International Exstrophy Conference In Oklahoma City, OK, USA


Friday July 8 – Sunday July 10, 2016 Save the dates: July 8-10, 2016! Plan to join the A-BE-C community of families and health care providers for three days in Oklahoma City this coming July! The 2016 event is hosted by A-BE-C in partnership with the University of Oklahoma Children’s Physicians. Venue Details coming soon Oklahoma City, OK United…

Kirsteen Lupton Plop – Pride of Britain


Editors Note:  Kristeen Lupton will be toured the USA in 2014.  She attended the Association of Bladder Exstrophy Community (ABC) Great Lakes Chapter Campout July 25-26, 2014,  and attended the California Bladder Exstrophy Support Team (BEST) Campout August 1 -3 2014. By Kristeen Lupton Plop Hey, my name is Kirsteen Lupton Plop, I am twenty years…