2019 A-BE-C Great Lakes Chapter 11th Annual Summer Campout Friday, July 26 to Sunday, July 28, 2019 – You are invited to join us for a weekend campout with families dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias. This is a great way to connect with other families, share in similar experiences and know…
Tag: rare birth defect
Jon Pierroz – Adversity to Triumph
Jon Pierroz – Adversity to Triumph Jon Pierroz interview by Courage to Shine™ and he just got married this month. Classic Bladder Exstrophy Email to Jon: Jon@courage-to-shine.org Please read Courage-to-Shine.org disclaimer!
Rachel Fisher – Turning Fear Into Confidence
Turning Fear Into Confidence By Rachel Fisher, My name is Rachel Fisher, I’m 23 years old and I was born with classic bladder exstrophy. My life began in New Bern, North Carolina in 1992. My medical experience started with an immediate closure, reclosure and bladder neck reconstruction. Unfortunately, at age four I developed blockages in…
The 2016 B.E.S.T. (Bladder Exstrophy Support Team) Campout
Friday August 5 to Sunday August 7, 2016 Location: Campground By The Lake, South Lake Tahoe, CA, USA Address: 1150 Rufus Allen Blvd, South Lake Tahoe, CA 96150, USA IF you’d like to stay in a hotel, accommodations are close by. Inn by the Lake – This hotel is very nice and it’s almost across the street…
THOMAS EXLER – Founder & Chairman of Courage to Shine
Note: In 2012, John Walsh from Stomawise website: http://www.stomawise.co.uk/ which is based in the United Kingdom, invited Thomas Exler to write about his story for the My Story section of Stomawise website. The following below was submitted to be placed on the website, however it had to be edited due to the available space and here is the link the article up on the…
