BRITEN DOUGLAS – 2019 COURAGE TO SHINE™ Lisha Martinez & Adam Young Award Recipient My name is Briten Douglas and I was born on October 27th in 1986 with bladder exstrophy. That makes me 32 years old! I say that very proudly because that also makes me a survivor for 32 years of a birth defect that has…
Tag: Kidney
Wen Holmes – If you don’t leap, you will never know what it is like to FLY!
If you don’t leap, you will never know what it is like to FLY! By Wen Holmes I was abandoned in Chongqing, China at the West South Hospital Outpatient entrance in July of 2002; I was approximately 2.5 years old. Born with bladder exstrophy; my bladder was still on the outside, the tissues surrounding the…
Anja Christoffersen – Behind The Smile
Note: Anja Christoffersen released her book Behind The Smile in October of 2018. You can view her website at Anja Christoffersen. By Anja Christoffersen At 28 weeks of pregnancy, my parents found out I had a life-threatening condition that malformed most bodily systems. Devastated, my parents began a search for answers. There was no cause identified and…