2019 International Exstrophy Conference in Los Angeles, California, USA


2019 International Exstrophy Conference in Los Angeles, California, USA Save the dates now! The 2019 International Exstrophy Conference will be at the Children’s Hospital Los Angeles on Friday, June, 28 through Sunday, June 30, 2018. More details to be announced in the coming months. Website: The Association for The Bladder Exstrophy – 2019 International Exstrophy Conference  More details…

Tommy Ludlow – Climb up to Mt. Everest Base Camp!!


Tommy Ludlow – Climb up to Mt. Everest Base Camp!! 12-year-old Folsom boy climbs Mount Everest despite medical condition Tommy was born with exstrophy, a rare condition that occurs in about 1 of every 50,000 living births, according to the Urology Care Foundation. Author: Frances Wang Published: 3:13 PM PST January 2, 2018   As the Ludlow…

Caelin Mooney – Kinder than Necessary


Kinder than Necessary By Caelin Mooney My name is Caelin Mooney, I am 22 years old, a future child life specialist, an advocate for children and families, a Godmother, a sister, a cousin, a niece, a daughter… the list could go on and on with labels that pertain to me.  Along with all of these…