Jenny Jones – Life’s a Polyp


I’m Jenny and my medical story started when I was about age 8. I had been experiencing chronic abdominal pain for a while. My parents knew there was a chance I had inherited the rare disease Familial Adenomatous Polyposis (FAP) from my mother and perhaps this is what was causing my abdominal pain. They began their efforts to have me evaluated by a GI specialist but would encounter barriers placed by their HMO insurance. A referral to a specialist was required by a primary care doctor. However, my PCP dismissed my pain and told my parents I was “just whiny”. For me to be seen by a GI specialist, my parents decided to change to a PPO insurance plan as soon as possible so that we would never require a referral again to be seen by a specialist